Darling, I know it's been a while but this situation totally calls for hugs, so : *hugs you tigh* I hope you all will be alright. I've heard of this disease because a lj-friend of mine: her husband has the disease too. They've been having troubles during the last months and she's been through long and tiring weeks when his husband was at the hospital. She was a bit desperate on the end that their troubles never seemed to end and finally he went back home right for Christmas and he's okay again.
Don't lose hope my dear. This lj-friend and I aren't really close, but maybe if you'd like, if you need some infos or someone to talk to about the disease, who knows what she's talking about, I might try to ask her if she'd like to talk with you?
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I hope you all will be alright. I've heard of this disease because a lj-friend of mine: her husband has the disease too. They've been having troubles during the last months and she's been through long and tiring weeks when his husband was at the hospital. She was a bit desperate on the end that their troubles never seemed to end and finally he went back home right for Christmas and he's okay again.
Don't lose hope my dear. This lj-friend and I aren't really close, but maybe if you'd like, if you need some infos or someone to talk to about the disease, who knows what she's talking about, I might try to ask her if she'd like to talk with you?
* huggles again *
Love to all your little family.